I'll try to make this quick...

Who knows what can be unleashed when I come to post on my blog...

Last Thursday, Jeff and I had tickets to go see the Bar J Wranglers, a popular local attraction just outside Jackson, WY. They were coming to Rigby and never having seen them and always wanting to, I got us tickets. Well Thursday came and I was all set, I had the babysitters lined up and everything was ready to go, except Dylan that is.

I took Dylan to speech like we do every Thursday except this was waayy different. We walked in and I saw a side of Dylan I had NEVER seen before. He began yelling and screaming hysterically, he folded his pouty arms and rolled up into the fetal position. Matt, his speech therapist that Dylan usually loves and adores, came out to see what was wrong. Matt told Dylan that if he wanted to Dylan could knock on the door and they could start speech whenever Dylan was ready. Well, Dylan didn't move, fingers in ears, fetal position, did not move. Until a moment later, Dylan leaped out of the chair, went to Matt's door, threw the door open, and SCREAMED at Matt. (I was deaf for a few minutes after that.) Well....knowing that speech was really not going to happen, I somehow got Dylan back out to the van and we rolled away. I knew that I could not leave Dylan with a babysitter, no matter how good they were. I called Jeff and told him to find someone else to go with, called the sitters and cancelled with them.

I've had a hunch for awhile that he might have autism, what I've seen in the last two weeks really has me questioning it. So he has an appointment for an evaluation on November 25th, which really CANNOT come soon enough. It seems like everyday we have reports from school of him spitting or scratching someone or some other tough behavior. Dylan is really an affectionate kid who just seems to be in between a rock and a hard spot right now. My heart aches for my little boy and I don't feel like I'm doing enough for him.

He pediatric neurologist called me yesterday with his EEG results. (Tell me if you understand this...) Dylan didn't have any seizures while we were there, but has the potential to have seizures. (WHAT!?!) He can't put Dylan on any meds because nothing is definitive, but he might be seizing when we don't know it. WOW, that was worth it. And for some reason, we are taking a 'wait and see' approach. Whatever.....

We also learned yesterday that Jared will need another set of tubes in his ears because his right one is not working and is fairly deaf on the right side. His adenoids will also be taken out in case they are what is causing blockage.

I guess that about sums it up for us.....

Photo update

This is Dylan during his 23 hour EEG. He is talking on the phone to Taylor. The part I remember best is when he said "I wuv and miss you Taylor!!" What a good brother.....

This is the computer he was hooked up to with the camera on top to watch him and how he looked as it correlated to his brain waves. As of today, no results yet.

Dylan for Halloween was Woody from Toy Story with his horse Bullseye. Second year in a row but if he doesn't care, why should I!?!

Taylor was Supergirl. Thank you to the Beagleys for letting us borrow this (Many Many Thank Yous!!!) She loved it and was so cute!!

Jared was a zebra. Its a heavy jacket with the zebra hood. I think all of the kids have used this at one time or another for Halloween.

Catching the first door, Grandma & Grandpa's door!!!

Tagged

This is from a tag from Melody. This tag has you post the 6th picture in your 6th folder.

This is just from a few months ago. None of my kids liked pacifiers. Jared finally decided to try one out.

I now tag:

1.Stacey

2.Amber

3.Amanda

4.Tiffany

5.Adele

6.Lexi

There's got to be a rainbow somewhere.....

For the last couple of days, I've told myself to remember stuff so that I could blog it. Tonight I don't really want to journal it but feel like I should.
MONDAY the 20th
As a whole really not a bad day. I got some stuff done, and went to class to memorize muscles. Yeah!! I came home to news about Jeff and his job. Not very good news.
TUESDAY the 21st
Went to Dylans IEP (Individual Education Plan) at his school. I LOATHE IEP meetings. They always seem so negative to me. 'Here is what your son is doing wrong. Here is how far behind he is. His behaviors are getting to be out of control. We don't know what else we can do to help him.' Why would anyone look forward to that. I'm a little frustrated with the school because I can't get a straight answer. If I wanted to know if they think his aides are good, of course they are going to tell me its all good. They are not going to want to say that they hired bad people for Dylan. Also, his classroom teacher admitted to me that she still hasn't read his IEP. I mean its almost November. What the rush!?!AUGH!!!!!
Then I get to go to work. Not a bad night.....
WEDNESDAY the 22nd
Take a quick nap then off and running. Skills day at noon to experience 2 hours of drudgery and lecture. 'You're not doing this right. Don't forget to do this and order this. Here are your statistics with this and this, not good enough. Do more, do better, work faster.....' Why would anyone look forward to that, especially after working the night before. Run home, try to get in one more nap before leaving for class at 5 PM. After class, go to work. Work Wed. night....not so much fun. We delivered three babes within 10 minutes, admitted an induction and had 2 outpatients. One of which was 26 wks. and 4 cm. So we shipped her. (THANK GOODNESS!!!) But during the course of 4 hours, I had the most intense adrenaline run I think I've ever had. Because, when it was all done, my brain was acting like I had taken 3 Lortab, when I hadn't taken anything.
THURSDAY the 23rd
Take a quick nap then off and running. Jared had physical therapy at 11AM then I had to go back to work to pick up somethings I had forgotten. Went up to campus to take care of some stuff, then a quick trip into Wal-Mart to pick up some necessities. We were home by about 2PM. Another quick nap before getting up to continue to pursuit of studying for an exam and packing to go to SLC. Pizza Hut was my salvation for dinner. Between left over pizza and all the cold cereal I got at Wal-Mart, I knew that my little people could survive while I was gone.

FRIDAY the 24th
(This is where I know you are going to get jealous!!!)After getting ready, serving breakfast and getting Taylor on the bus, I went up to campus to take my exam, and I spent almost an hour and a half on it. I felt like I had done really well but my score showed otherwise. (Oh well.) I ran home and got Dylan and loaded up and left. We stopped by my mom's to wish her a Happy Birthday (HAPPY BIRTHDAY MOM!!!)then got on the road to Salt Lake City. We (I) sped a lot to make it to Primary Children's Medical Center by our appointed time of 2:30PM.(We were only 10 minutes late.) We went to Clinic B (The Neurology Clinic) and spent the next hour and a half telling Dylan's life history and cleaning a spot on his head, pasting the electrode, placing it on his head, putting gauze over the top of that, wherein they would superglue (no joke)the gauze into his hair, then dry it in there with oxygen from oxygen tubing. Yeah, we did that 23 times for the 23 electrodes on his head. We then wrapped his whole head in gauze then tape on top of that. We marched to the RTU (Rapid Treatment Unit) Rm # 103 where Dylan spent the next 23 hours confined to the bed (other than quick bathroom breaks) for his long term EEG. Now I would imagine that it would be difficult to keep any energetic 6 year old to stay in a bed, calm and happy for 23 hours. Dylan of course, no exception.

SATURDAY the 25th
He had a headache all of Saturday which did not help the happy part. I think that as a whole, he really did do well. However, he did have his moments of tantrums and impatience. The helicopters were loud and he doesn't care much for Primary Children's in the first place. I remember looking at the clock in the van as we got back onto I-15. It was 3:30PM. We (I) decided to stop in Layton to take a brake, which as a whole was probably not a good idea. Dylan still had a headache and I was trying not to feel to overwhelmed by the enormity of the week I had just gone thru and what I knew was waiting for me at home. I got Dylan a kids meal at Carl's Jr. and I stopped by Cafe Rio to stock up on the pleasure that we do not have here in Idaho. I filled up the van at 2.83/gal. and got back on I-15 for the drive home. My mom had called me and told me to fill up again in Rigby which I gratefully did for 2.68/gal.
We pulled into the driveway just after 9:30PM. We walked in and Dylan began to whine about putting his pajamas on. STILL having his headache and being so tired, that whine was to be expected. Jeff had some snide comment to Dylan and then he was gone to bed. I put Dylan in bed and he was asleep two minutes later. I unpacked the van, cleaned it up the best I could, unpacked the suitcase, did the dishes, did some laundry, burned the garbage, cleaned up the kitchen, (I don't remember hearing about a tornado being here, but I guess I was wrong.)before my nose started bleeding. Just when I started to think about going to the ER for my nose, it FINALLY stopped. Then I went to bed....at 1AM.


SUNDAY the 26
Woke up and guess what !?! Bloody nose, not for nearly as long though. Up and did pancakes and waffles for breakfast. Worked on getting super glue out of Dylan's hair. Combed thru his hair with fingernail polish remover(acetone) for half and hour then washed his hair three times. Kids thru the bathtub. Hurry and print off my primary lesson from the Internet, skimmed thru quickly. Get my self ready, kids ready and out the door. 15 minutes late for church. Primary program for sacrament meeting, left Jared with my mom and sat with the kids in my primary class. They really did do a good job. On to primary, sharing time then my turn to teach the lesson. Home. PB&J and grilled cheese for lunch, then took a quick nap. (Everything is a quick nap!!!) Got up and took the kids to Grandma's house, checked on her chickens and Grandpa took them on a 4-wheeler ride. Home kids in P.J's and rush them off to bed. Great week, huh!?!

Oh yeah, I forgot to mention that at some point during the last 10 days, someone (other than me)has been sick. Flu-like sick with it coming from all over the place. In fact while I was doing this post, I had to stop and go clean up after Taylor. She threw-up in her sleep. It was the smell that led me to the discovery.

We will know the result to Dylans EEG within the next week or two. And if its inconclusive we would be invited back to do that again (do I dare say it) for eight days.(I can't type what my response was to that!!!)

I know, I know your jealous. I can imagine now how you all are lining up to walk a day in my shoes. I'm sorry, its only me who gets to do this. I'm sure you all will get your own turn.

And P.S. I do not mean this post as a contest (Amber & Fay) for who has the harder life. If I were to have gone thru a week like this a year ago, I probably wouldn't feel like it was so bad....perhaps I'm just feeling a little worn down. If the truth be told, I need to remember to

BEE HAPPY!!!

I wonder...

I'm just coming home from work. It really was not a bad night. I got a lot accomplished and the night seemed to move along nicely. But I worked with someone for whom I know had good intentions to keep good conversation or to just know how I was doing. But last night was not a good night to pursue that with me. I've heard in staff meetings that we are suppose to check our lives at the door, that life is to be left outside, and that work is work. Ya' know, sometimes, I'm just not very good at that, and I bring life to work. I know she meant well, but I could not ignore her enough.
I wonder...
I wonder how to disclose some without disclosing all...
I wonder how to tactfully say, I'm not willing to tell you anything...
I wonder how to engage in pleasant conversation when you really really don't want to...
I wonder how many times I've intruded upon others tough nights...
I wonder why people tell me what they do...
I wonder why my Associates Degree is in communication...
I wonder if there is any way to measure exhaustion...