PICTURES

Dylan after his MRI, getting ready to go home. Not terribly happy, but still under the influence of being sedated for his MRI.

Dylan and Jared waiting for Daniel &Sarah (my brother & new SIL) to come out of the temple.

Aren't they cute!!
SMOOCH!!
Posin'
I think that is one happy girl...

Welcome to the family Sarah!!!

Primary Children's Branch

The stained glass window in the meditation room at

Primary Children's Medical Center

I attended sacrament meeting today in the Primary Children's Branch. It is a branch overseen by the University of Utah 3rd Stake. It has a branch president and an assistant. Those in the University 3rd Stake help take care of what needs to be done. It starts at 10:30 with an opening song and an opening prayer. Since there is never really any business to take care of, they go on to the sacrament hymn and to the administration of the sacrament. It is followed by a musical number and a speaker. Today was the high councilman. He spoke for 7 minutes. There was a closing song and a closing prayer and we walked out at 11:02. I have been to this branch before. I LOVE the fact that it is only 30 minutes long. Then in the time following, they take the sacrament around to those who are stuck in their rooms...like Dylan. They come in and introduce themselves and of course Dylan introduced himself. They say the sacrament prayer, not necessarily to bless it again, but as a way for those receiving it to be able to hear of the covenants and blessings that come along with it. It was so sweet because Dylan was so anxious to fold his arms and to partake of the sacrament. He is such a good kid.
I have to admit on a personal note, that as I sat in that auditorium on the 3rd floor, I had never been so excited to partake of the sacrament; to be there. This week has been so full of unknowns and twists and turns. I've been away from family and at times have felt so isolated. There has been nothing routine about this week and it has proved more emotionally challenging than what I first thought. But I walked into that meeting, to join others in jeans and t-shirts, sandals and flip-flops, IV poles and pagers, baby's with masks on and teenagers that have lost their hair in their battle against cancers, arms wrapped up in coban and IV lines next to suture lines. And as I did, I knew that the spirit would still be there. The covenants of the sacrament were the same. We were all joined in a common purpose of not only the gospel, but that of our children as well. The speaker talked about how discouragement is simply a lack of perspective. I don't think I've ever thought if it like that before, but it makes sense to me. I've felt discouraged in the last few days. A lack of answers to all my questions, sleep deprivation, being gone from home, money and time sacrificed, putting Dylan thru a week of torment, and days at work lost are only a few of the reasons why I've been so discouraged. As like what was said this morning, I lack perspective. I don't know why but, perhaps we were supposed to do this for a reason, regardless of the outcome. Because I lack perspective, I just don't know. Because I don't know...I get discouraged.

I hope this isn't too long or boring...

Well...(I'm trying to decide where to start) Dylan and I are is SLC. Resort PCMC IS NOT all its cracked up to be. I'm sure for Dylan its no too bad. He gets to stay in bed, order whatever he wants to eat from the kitchen (they call it 'Room Service') and gets to play on the exercise bike, play games, watch movies, do puzzles, color, play with play dough, put together Lego's...etc... His down side includes the strobe light we tried to put in his face (but it didn't work) and the sleep deprivation we inflict upon him (not letting him go to bed till after midnight and getting him up by 6 AM...no naps) and in turn I get the same...

My mom came down on Wed. to spend the night with Dylan. So I went to the Verizon store at the Gateway and got a new phone (my phone was under warranty for 6 more days). Then I went to a hotel and slept in a real bed (slept in til 9:30...cannot remember the last time that happened), and took a real shower and I loved it.

THANK YOU MOM!!!

We still have not seen any seizure activity yet. That's why we keep pushing him. Turns out sleep deprivation stresses the brain. It also makes for a very grumpy 7 year old. (I had to just restrain him so they could do a blood pressure. I told them to make sure they chart he was having a tantrum, 166/66 doesn't look very good.)

So far they are talking about us staying for the weekend, and doing his MRI on Monday. It's been long enough that I've been away from home, and from my other two babes. Taylor and Jared,

I MISS YOU ! ! !

Monday will have put us here for a week. I don't ever remember being away from home, my husband, and my kiddos for that long. (I have to admit I'm afraid of what my house looks like by now. YIKES!!!)

Anyway, I'm still updating Facebook a little more regularly than this blog.

Dylan says 'I got to say at July 32 2009 because I want my yo-yo ball today right now.'

Sorry no pictures, I think it would be more of the same. Dylan hasn't left this room since he walked into it.

Thank you to you all for you love, words of support, letting Taylor to come play, and all that ya'll do for us. I don't think I can express how much it means to us.

THANK YOU ! ! ! !

July 13, 2009 in pictures

Dylan and I left yesterday, bound for SLC. I had worked the three previous nights before and had gotten my four hours of sleep in as we packed in the van and left. We left Taylor and Jared with my parents for a sleep over. And although the A/C in the van is not working and the average for the trip was 87 degrees, the decapitated deer on the side of the road on the Malad Pass was gruesome, and Dylan was crying about being stuck in jail forever, we made it to SLC fairly unscathed. I noticed that my phone quit working on the trip down and despite all the time I've spent in communication with Verizon, it is still unfunctional. Thus, if you have attempted a call or a text and I have not replied, please do not be offended. I'm just hating my phone right now.
When we woke up this morning, we called Primary Children's to find out we had been bumped to a 2 PM admission time. And although I thought about how we could have stayed at home one more night, it turned out to be quite good. We went and spent a couple of hours on Temple Square. I think it was really good for the both of us to be out in the sun and fresh air on a beautiful day, because it won't happen again for awhile.

Dylan in front of the big man...

A mother/son shot.

Dylan on the second floor of the Joseph Smith Memorial Building. He loved the 'softy' railing.

How often do you get a picture like this!?!


Of course he couldn't resist the water fountains on the 10th floor.

Not loving life so much right now... His less than happy face after 21 leads were placed on his head. They would apply a sandy cleaner to his head. Followed with the lead with a conductive paste, covered by a 2x2 piece of gauze that was then drown in a acetone based super glue. Talk about getting high. PEE-EWE...They would dry the super glue with oxygen from their oxygen tubing. I'm pretty sure his hair will be much shorter the next time you see him.

21 leads ALL over his head.
Then bound in gauze and tape. Why didn't we think of this for halloween!?!

A much happier kid after 2 1/2 movies, playing nerf basketball, winning Connect 4 and Go Fish, and his fav...getting a new truck from 'The Happy Factory.' It all almost makes up for getting a hep-lock.

His order for this long term EEG is for 6-8 days with an MRI to follow when he is done. So I am sure we are going to have a GREAT week at resort PCMC. I sooo appreciate everyones concern, love and support. There are not words to describe what it means when others care about you and your family.

So stay tuned. With no phone, the Internet is my connection to you all. I'm Face booking a ton, perhaps too much. I hope ya'll are patient with me, and

THANK YOU

again.

Happy 4th of July ! ! ! ! !

I worked on the night of the 3rd of July which made me wiped out on the 4th before it even began. So when we went to the parade, I didn't stay for the WHOLE thing...

Taylor and Jared ready to grab all they can!!!

Jared, aka The Tasmanian Devil...

The planes in formation, doing a fly-by.

The GINORMUS shopping cart...

My brother and his fiance...

My brother Matt (in the blue shorts). He works at a local gas station. One of his jobs is to help wash cars and one of the best (if not THE best) parts of the parade is when all of these guys come marching down the street in drill team formation, doing car washing motions as their leader (boss) leads the formation to the song "At The Car Wash" by Rose Royce. It is a HUGE hit, every year!!!

And MARCH 2-3-4

Time to kick it boys!!!

Matt topping off the pyramid. Way to go BRO!!!